So my soon coming daughter kaylen has Down Syndrome (DS).
my wife and I have started talking about the future with a baby/child/teen/adult with DS. Right now the big concern is finances. My job covers us just fine and my wife had a home business which covered all the costs of food every month. Well, now she's lost almost all her business, and with Kaylen she may not get the chance to get it back. We'll need a new home at some point, and next year my school loans will probably come due.
At times the only time the future looks great is when we consider that I currently have a stable job, even if it doesn't pay quite enough, that our family with the addition of Kaylen will be a new adventure, our other children are currently the coolest in the world, and we have an awesome church family and friends.
When we lose our focus and take it off of God and family, the concerns become significant fears. I need to get a supplemental job -- I'm trying to find part time work as an online college teacher, but it's moving very slow and the responses I've gotten have been less than salutatory. After I graduate I'm going to need to either get a good supplemental job, get a better paying job with the place I'm at now, I just find a better paying one as a college teacher or researcher. With Kaylen's addition the future is so nebulous and unsure right now, it' could be come despairing without my wife and my faith.
Yep, I'm feeling pretty lost but I guess that's the point at which you embrace those around you: family, friends, church, and God and simply ride the wave and pray.
Stay strong
D.