Injuries and my kids

Posted August 1, 2010

So, my back is still killing me.  just to the left of my spine on my hip there's this great pinching feeling and it causes my left calf muscle to tightening and at times spasm.  I think this one is permanent regardless of my ability to keep lifting and training -- yes, I'm having it assessed.

last night I was trying to zercher squat and as soon as I unracked the bar, my back, in the spot described above said, "mmm, NOT TODAY!!"  I actually listened and re-racked the bar.  Now, normally I would have fought through it and kept lifting and dealt with the pain later but part of my thought was, "I can't get disabled because I have three kids and a baby with downs on the way.  I need to be there for them."  I was also really angry I couldn't do the lift.

the information that kaylen has down syndrome has really changed how I process and think about stuff -- like a chronic injury.  I can't just get injured and sit around for the rest of my life while my wife takes care of everything.  Children need a mother and father and need to see them actively engaged in the family; for some reason Kaylen's diagnosis has really hit that point home harder than usual.

It's interesting by many of the issues coming up around Kaylen and her DS diagnosis are issues parents should be considering with all children.  things like being well informed so you can speak cogently with your pediatrician; things like understanding your child so well that you become the expert and teach your pediatrician about your child and their uniqueness; things like having patience and providing a thorough, nurturing environment.

just think what the world would be like if parents invested so much into all children.  See kaylen's already acting as my teacher, reminding me of stuff I knew intellectually but could put into deeper practice.

stay kewl

D.

 

Comments

It's great to "meet' you. Congrat's on the good news about Kaylen's heart. That's HUGE!!!!
My daughter will be two in Oct. It's one heck of a ride! Welcome aboard.

Just stopping by to wish you congratulations on the upcoming arrival of Kaylen. My 2nd child, my daughter, has DS. She just turned 6. I didn't know pre-natally, I found out the day after she was born. I can certainly relate to all of your thoughts, concerns, and fears. I thought my life would be completely changed because of DS. And while it is certainly a little different, it's not as life-altering as I expected. She's just like my other kids, except with one extra chromosom, and I do my best to treat them all the same. It's great to see a dad so involved, and prepared. Once you hold your baby girl alot of those fears will disappear. If I could offer any words of wisdom it would be to not let the "facts" load you down. Every child, with or without a diagnosis, will follow their own path developmentally, and medically. The facts are only average guidelines, not set in stone. Kaylen will be Kaylen and enjoy her as she is. I can promise you this girl will have you wrapped around your finger and you will not be able to imagine life without her in it, 47 chomosomes and all.

Congratulations. So, you're lost, eh? You actually seem like you're pointed in the right direction, so that's a great start. But I happen to have a very detailed map of the region that I would like to hand over to you (click the link below to visit my blog). Maybe, after studying it, you can find a few shortcuts. I highly recommend starting at the very beginning so you can see the progression of my journey. I think it will be meaningful to you.

Nice to know you, and don't hesitate to email if I can ever help.

http://downwithoz.blogspot.com/

Hey! Congrats on the upcoming arrival! You are in for a RIDE baby! Yeah, not really the ride you were expecting, I know. Probably the ride we ALL should be riding with all of our kids, weather they have a disability or not, its just that our kids with DS (or other conditions) do just like you said. They give us a little slap in the face and bring us back to reality. Some of us are better at seeing that than others. I didn't have a prenatal diagnosis, so we had to deal with things afterward. I have the personal belief that God gets us the information when He feels we need it. Some need it ahead of time, for whatever reason and others of us need it later. But, here you are. You know. You're dealing. I'm sure some days are better than others. They're that way no matter when you find out. We're 14 years down the road now. I almost feel like an expert one day, and then the next I realize we're stepping into a different phase called "young adult" that scares the crap out of me, really. Love the name, by the way. Kaylen.

Welcome to "the club"! You have been chosen for one of the best surprises in life. Our youngest daughter is 8 and has DS. We knew prenatally because a heart defect was found during a routine ultrasound. Like you, I searched for all the info I could get my hands on for both DS and the defect. I felt ready to face the many unknowns because I had armed myself with knowledge. Little did I know how blindsided I was going to be with an overwhelming feeling of love, protectivness and connectedness to her. I recall her eyes bearing into mine the moment she was laid upon my chest, and we've been in love with her ever since. You will become her advocate and speak up about things you never dreamed about before because it's obvious you want her life to be the best it can be. Your family is being given a great gift from the Lord! I follow a few blogs from other parents, but my favorite is Kelle Hampton's -Enjoying the Small Things. Check it out. You won't be disappointed because she talks freely about all the thoughts and feelings that many of us have and her Nella (and big sis) are simply beautiful kids. My prayers are with you.

Hi there-congrats on upcoming arrival of Kaylen! Our fourth baby has DS too, a little girl, Brooke was born this past January. She's amazing, just wait! Reading your posts I feel like I'm listening to my husband all over again, even the parts about getting healthy since we now have a special needs child. But now that she's here she's just one in the bunch, who happens to get therapy a couple of times a week. visit my site and take a peek at how cute she is!! welcome to the club...

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